The Spina Bifida Association of Western New York, a registered 501 (c) 3 non-profit organization, was founded in 1973, to address the specific needs of people with spina bifida and/or hydrocephalus and their famililes in the western New York area. 

Our mission is to enhance the lives of individuals and families affected by spina bifida in the eight-county Western New York community by providing education, information, social support, recreation and advocacy services and linkages to other relevant service providers.  The Association also seeks to inform the larger community about spina bifida, hydrocephalus, and related neural tube defects and to promote preventive measures.  The Association accomplishes its purpose through a dedicated network of Board Members, family members, professionals and collaborating organizations.

The Spina Bifida Association is run by a board of directors, made up largely of parent volunteers.  Together, we provide a variety of programs to benefit families in all 8 counties of western New York: Erie, Niagara, Allegany, Cattaragus, Chautauqua, Orleans, Wyoming, and Genesee.

Please see the current list of our Board of Directors.

 
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